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I had a difficult night last night with a lot of pain. This usually happens after I visit Torquemada the physiotherapist. It settles down over the next few days and is generally much better because of his ministrations. He said, “let’s hope you don’t have even more pathologies.”
Some more blood tests results are due and I am sanguine about them. It took many months of rapidly worsening health for the wife’s Myeloma diagnosis. This after a very scary mis-diagnosis which had me contacting people assuming a strict time pressure.
My list of ills is relatively long and we could use Bob’s simple diagnosis. It is unlikely that there will be some overarching diagnosis which explains everything.
We can’t turn back time. And there are many things in life which cannot be fixed, solved or otherwise put right. Social conditioning suggests that an apology can make things better. An apology does not alter Karma and forced begrudging “false” apology makes things worse karmically speaking. If there is some genuine acceptance then that might take the sting out of the accrued karma, a little. What our parents tell us in kindergarten does not really work, “say sorry to Sally for nicking her Maltesers!!” It is a pretence often.
During the night I had a brief dreaming segment concerning Myeloma UK. It had occurred to me if we move back to get involved there. I have probably read more medical-disease-epidemiology papers than most. When I have interacted from here, I have come across a UK based parochialism, “that is the way we do things here!” Best clinical practice in France, Europe and the USA is not followed due to the accountants at NICE. In a real sense if you do it well first time, it saves money instead of doing multiple rounds of cheaper less effective treatments.
Luckily the patent on Revlimid has expired.
There is a well paid career path in charity management and I am not entirely convinced that the high salaries are justified. I find the heavily PR oriented and sanitised Web presences a little unreal. I understand that they want to give hope, but they do airbrush reality. I understand that they are not aimed at the likes of me. They are often not very real and people revert to blogs and video from genuine human beings. Things need a human face not some corporate blah.
When I was looking for a job, I got interviewed for several board positions. Because I was a bit young and not one of the gang and all praising, I did not get the job. I was asked what I could bring. I said new ways of thinking, some energy and something fresh. Comfortable places with cobwebs don’t like that sort of thing. People in power although they like the theoretical idea of a functioning challenging board, do not really. Itchy back disease is prevalent. I am more than 90% sure that I would have brought, eventually, positive change. I am very organised and good at process.
Apple carts do not like to be upset.
Sometime gatekeepers keep useful people at bay.
Anyway, only my alpha-globulins have come back low. Low alpha 1 can mean alpha-1 antitrypsin deficiency which can cause lung problems like COPD and wheezing!! This can be genetic…
Both alpha 1 and alpha 2 low can mean liver problems.
What do you reckon Bob?
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Dreamyoga 