Former Imperial Colleagues – Big Japan Trip Dream – 01-06-2025

Here is last night’s dream. Out of the blue. I have not spoken with any of the people in it for ~ twenty years!!

The dream starts in a small seminar room. It has a London, Imperial College feel. The décor is bland with diffuse bright overhead lighting. There are multipurpose tables at which are set two people, each. The tables are arranged in a U-shape and I am at a table by myself at the focus of the U-shape.

Sat around the tables are various ex-colleagues from Imperial College. They are all professors and some are now “big-cheeses”. They are all from the age cohort slightly younger than me. My direct age equivalent ex-colleagues are noticeable by their absence. The “job” has been handed to the younger incumbents. They are mostly male, with a few women. I had no “problem” with any of them historically. They have the brief to find a solution and make amends. Something has been cobbled together, some suggestions. This they have just presented to me. I cannot recall what.

I say to them that I am in no way interested in what they have just suggested. That they have the wrong idea about where I am coming from and what I might want. Which is close to nothing. That they are looking at things solely from their perspective. I am not like them and do not share their motivations.

There is a faint ripple of unease. I say that I am leaving and walk slowly, relaxed, out of the door, which is behind me.

The scene changes to a London airport terminal. I have been booked along with others for a big high profile visit to Japan which includes some technology and some cultural things. I am not keen from the get-go. I notice that my chest is wheezy and take a Ventolin inhaler. It remains a bit wheezy. I decide that it would be mad for me to travel to Japan for a long high profile visit. I know that the tour organiser will be at the airport well before all the others might arrive. Implicit is some of my age equivalent academic peer group. I make my way there.

I approach the woman who is young and smartly dressed with dark hair. I explain that she had better cancel my flight and all the other things associated with the trips in order to get as much as a refund as possible. She is unconvinced. I wheeze for her. She says that for the insurance she will need a medical opinion. A doctor is summoned and they concur that is it is unwise for me to travel. She cancels my ticket. She asks me to try to buy a ticket to find out what the going rate is. I go to the British Airways desk and inquire. The price is multiple thousands of pounds because it is cherry blossom season. I go back to the woman with this information. She is in a video call with a Japanese restaurant chain cancelling my meal plan for the week, which amount to tens of thousands of Yen. She cancels my suite at the hotel in central Tokyo. I say that I made a private reservation at Langham’s restaurant where I have been before and ask her to cancel this. She does.

There is some time before all the others get there. She tells me to buy a ticket to London which I do. I do not know where the airport is now. I sit down at a computer terminal and start doing a Japanese language quiz. One of her colleagues comes over to me and is surprised that I am doing so well on the Japanese. I explain to him that I have been many times before and spent time with a man and his family in Sendai. He suggests that the man was gay. I say not because I have been around quite a few gay men and understand them well. He is upset that I am not going on their carefully organised trip. I say that I am too unwell to travel and that in general my health is very poor. People do not understand how bad it is.

The dream ends.

Lifting up – Drone Overview – Colours – Dream 31-05-2025

Here is this morning’s short dream which replayed a number of times.

The dream starts in a normal city setting in which people are going about their business in a semi-frantic manner. They are rushing about. They are sat at home watching TV, playing computer games and glued to their devices. There is much toing and froing. The colours of life are not vibrant and there is enmity. People are convinced that they are right and living THE life. Like a speeded up Koyaanisqatsi film time lapse, life whizzes by.

I am sat on a small grassy hill nearby. In my hand I have a flying drone controller with which I initially pilot a drone over their life. I turn on the camera and cast the images to their devices. I lift the drone which is white with four silent propellers up out of the scenery to show them the beauty outside of their world. I take control of the drone with my mind and project a world with less enmity and stress. It is relaxed green and pastoral. I show them what they are missing. The colours are bright and vivacious.

The scene starts to replay. As I start to lift the drone out of their normality they set dogs on the drone. The dogs jump and try to catch the drone in their mouths. They are egged on by their owners. Who do not want to see. They, the owners, have high animosity towards me because I am trying to show them another, higher, wider perspective on their lives. No matter how hard the dogs try they cannot catch the drone and I continue to cast “higher” to their devices. I am not in any way thanked for my efforts.

The dream ends after several repeats.

The Loony Quiz©

To find out if you are a loony or not tick one box in either column A or column B, for each question.

 AB
Do I get impatient often?yesno
Do I lose my rag in traffic jams?yesno
Do I feel offended quite often?yesno
Do I think “life is not fair?”oftenrarely
Am I prone to over reaction?yesno
If I don’t get my way do I sulk?oftenrarely
Do I bear grudges?yesno
Do I seek to get even?yesno
If someone does better than me, do I get upset?yesno
Do I try to pull others down to feel better about myself?yesno
Have I ever had a bout of cranio-rectal disease?oftenrarely
Am I special?yesno
Does nobody appreciate me?yesno
Must I always be busy?yesno
Does silence scare me?yesno
Must I always be the winner?yesno
Do I always know best?yesno
Am I always right?yesno
Do I enjoy opining upon things I don’t really know?yesno
Do I enjoy gossip and trust it?yesno
Am I impressed by the unproven opinions of others?yesno
Am I genuinely opened minded?noyes
Are people who don’t believe the same things as me?crazysane
Is my belief system the only correct one?yesno
Is advancement better than happiness?yesno
Is kudos the be all and end all?yesno
If I win prizes / competitions does that make me feel better than?yesno
Am I a grand person or one of the little people?grandlittle
Do rules apply to me?noyes
Is material plane status important to me?yesno
Am I a bit of a tense motherfucker?yesno
Am I happy and at peace with the universe?noyes

Now count up the number of As and Bs.

In your best judgement are you a loony or not, what do you think?

Reasons to be Cheerful – Iron Two and Three

We heard on the news today that Netanyahu had a colonoscopy this morning. This means that he would have been on an industrial grade laxative protocol last night and this morning. He will have a sore sphincter and maybe, just maybe, he is now less full of shit. He has quite a few comorbidities. He is not renown for joviality, good will or a good sense of humour so the indignity of shitting his entire arse off may not have appealed to him. Laid out on a table with a metre long endoscope up your arse it is hard to be tough, macho and aggressive spouting bellicose propaganda.

Did you know that a single article in the Lancet can cost you forty quid!!

It turns out there is specialist research interest in excess bodily Iron in Rennes, particularly for rare Fe related genetic diseases. We just took the car to the garage and there was an advertising card “Jardin du Fer” so we are back roaming the streets and chanting “any old Iron” like pikeys in a white flatbed truck.

One of the guys from Rennes is a co-author:

One of the problems and benefits of having been a researcher in a previous incarnation is the ability to scan-read to spot gaps in knowledge and then zoom in, on the off chance there may be a research proposal lurking. The primer paper suggests the following diagnosis flow chart. I am on the far right pathway. All genetic testing is expensive.

On the basis of this I am possibly due an Iron MRI. Apparently, the presence of Fe changes the T2 nuclear relaxation time and by using various pulse echo sequences one can measure Fe content in the liver. One can also image Fe content relative to the spleen. The latter is more widely used.

The Fe build up could be genetic, alcohol related or caused by primary or metastatic cancers. The gastroenterologist said they stopped following liver for metastatic disease five years after colon cancer. This being the most likely hang out for colon metastatic disease.

The corporeal symptom of hemochromatosis are given below.

Hepatomegaly (Enlarged Liver) An enlarged liver is a symptom of underlying disease. It means that your liver is larger than normal. This may happen in response to an infection, advanced liver disease or cancer. Healthcare providers treat an enlarged liver by treating what’s causing it.

I have joint pain and have just added Osteoporosis to the fun list.

The default cause will be ethanolic, followed my smoking with my being a lard-arse a close third.

Maybe I am not special…maybe it really is that simple…

My research instincts say there may be something we are missing and have yet to find out about.

Reasons to be cheerful… Iron two and three.

Clearly, I Am the Problem – Neurodivergence

Over the years I have encountered many reactive and defensive behaviours in my interactions with people, mostly men. It seems to me that I do not do the ritual arse sniffing in the way they expect. Nor do I play the laddish itchy back game with enough ego stroking. The worse reactions are from men around 40. By the time they get to 60 they are past most of the BS. I do not piss up the wall of the urinal in the correct manner, apparently.

Clearly, given that I am the only common factor in all this, I am THE problem.

Chris Packham has been doing a TV series on neurodiversity in which he gets people who are diagnosed with various syndromes to do a short film to portray their experiences to their nearest and dearest. Most of the “weirdos” seem interesting to me and fairly high functioning. They are not boring.

The gist is that many feel/felt stress trying to fit and comply with the harsh societal expectations.

No matter how hard they tried they did not fit well and the “diagnoses” gave them a handy explanation for why. It brought relief and sense-making.

My own experience working with the diagnosed is that the worse thing “normal” people can express towards them is impatience and huff. If people are impatient, it causes fear and upset. It leads to internalisation and makes any attempt at expression far worse and more dreaded. Impatience could be said to be an enemy of neurodiverse inclusion. Impatience is the start of a far from virtuous circle.

“You should not be like that. It ought to be easy. Huff!!”

This is the foundation stone of cruelty directed at the different and the stick used to marginalise them. May be they/we are not the problem. Maybe it is the self-righteous and self-important “normal” people. These people who are highly impatient and immediacy fixated.

I know by experimental measurement that I am not neurotypical. I have measured my brain waves using a fast Fourier transform electroencephalograph. Mine differ in that there is way lower neuronal activity which I can also further silence.

It would be impossible to convey my state of mind in a film. Because “normal” people cannot handle neuro-silence and their internal dialogue would start to chatter. If you cannot be quiet mentally you simply cannot get it.

Felix, the stray cat, is unwell. We think we are in the palliative care regime. When I go to feed him and Gandalf, he gets under my feet and rubs himself against my legs. I have to pick him up gently with my foot and “throw” him out of the way. He thinks this is an ace game. Because of my arthritis I am not steady on my legs and stopping and starting is difficult. One day I may stand on him in a painful way.

There is no way that I can explain to Felix that if he is hungry the best thing to do is to get out of my way. Food would arrive quicker and with no less certainty.

It is very difficult to convey how and in what way one might differ. It has to be experienced personally to be fully grasped. All the rest is extrapolation or intellectualisation.

Upcoming I am going to be looking to have my hips surgically replaced. Already I am thinking about how I might behave so as not to get a strange reaction from the surgeon. I will not fit his mental models and there will be a disconnect. Yet I have need of surgery.

How much will I have to act and conceal and hide so as not to be THE problem?

How much will I have to reel myself in?

Is Preparation Bad?

I tend to prefer to be very well researched and prepared for most of the things which I get “into” or approach.  I like planning and scoping. It does not matter all that much to me if what I scope ever has fruition or not. I like wide global views and to consider implications. Other people, it seems, like to wing it or at least try. I’ll speculate that my envisioning is wider than most. I probably research to an extent which is beyond normal.

I am pretty sure that my predilection for this has pissed people off from time to time.

In answer to my question, planning can be bad in a socio-political sense. Others don’t like it.

It might be soothing for me but it can get the backs of others up and make then a tad hoity toity. Being well prepared can cause dis-ease in others. It may challenge sense of control.

In as far as I can tell I have put the nose out of joint for quite a few people who consider themselves experts and others who have had a bad experience of schools, and teachers. Self-important reactions are easily triggered. Planning by self can exclude input from others. People do not like having Ph.D. viva examinations from, me, Joe Bloggs who looks like a pikey.

People accustomed to being experts can be wary of the well prepared. It is easy to get very defensive reactions. Many are insecure in their knowledge.

I personally do not like to make stuff up on the spot because it can lack accuracy.

It seems to me that some people find my practice of preparation threatening in some way. I don’t need to talk things through to understand.

It takes all sorts…

It looks like I have gone and offended some people again…

phew…

1984 Quotes – George Orwell


“Orthodoxy means not thinking–not needing to think. Orthodoxy is unconsciousness.”


“Being in a minority, even in a minority of one, did not make you mad. There was truth and there was untruth, and if you clung to the truth even against the whole world, you were not mad.”


“If you want to keep a secret, you must also hide it from yourself.”


“If you want a picture of the future, imagine a boot stamping on a human face—for ever.”


“It was a bright cold day in April, and the clocks were striking thirteen.”


“Doublethink means the power of holding two contradictory beliefs in one’s mind simultaneously, and accepting both of them.”


“Sanity is not statistical.”


“The object of terrorism is terrorism. The object of oppression is oppression. The object of torture is torture. The object of murder is murder. The object of power is power. Now do you begin to understand me?”


“We know that no one ever seizes power with the intention of relinquishing it.”


“The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.”


“Don’t you see that the whole aim of Newspeak is to narrow the range of thought? In the end we shall make thoughtcrime literally impossible, because there will be no words in which to express it.”


“The past was erased, the erasure was forgotten, the lie became the truth.”


“Those who control the present, control the past and those who control the past control the future.”


“Reality exists in the human mind, and nowhere else. Not in the individual mind, which can make mistakes, and in any case soon perishes: only in the mind of the Party, which is collective and immortal.”


“All rulers in all ages have tried to impose a false view of the world upon their followers.”


Bioethics, Genetic Testing and Notification

This morning, just for a change, we went to another hospital for a genetics follow up to the wife’s breast cancer. In France they are very keen on prophylactic measures and like to test things in a lab wherever possible. The wife’s blood is going to be screened for genetic predisposition to breast and ovarian cancer. The results will have implications for her and her siblings, including the men. In French law the geneticist or the wife herself MUST inform her brother if the tests suggest that he too might have a predisposition for cancer. This true for if he lived in France not sure if it extends legally to the UK. The form letter on the government site, for the geneticist to fill in, does not really hide the identity of the provider of genetic material very well. Today she advised against sending this. It was better to pass on the tidings of joy personally.


« Décret n° 2013-527 du 20 juin 2013 relatif aux conditions de mise en œuvre de l’information de la parentèle dans le cadre d’un examen des caractéristiques génétiques à finalité médicale.

Notice : la loi no 2011-814 du 7 juillet 2011 relative à la bioéthique a modifié le dispositif d’information de la parentèle dans le cadre d’un examen des caractéristiques génétiques introduit par la loi no 2004-800 du 6 août 2004 relative à la bioéthique. La personne concernée est informée, avant la réalisation de l’examen de ses caractéristiques génétiques, de l’obligation qui pèse sur elle, au cas où une anomalie génétique grave serait diagnostiquée, d’informer les membres de sa famille potentiellement concernés dès lors que des mesures de prévention ou de soins peuvent leur être proposées. »


The gastroenterologist following my colon cancer has been very pushy about me notifying blood relatives because there is some genetic component to colon cancer.

I have already tested for HBA B27 which was negative therefore there are no requirements for notification. There are no possible interventions foreseen.

I am considering HFE and JAK poly screening, the latter of which costs ~€1500. The HFE if positive would indicate hereditary Haemochromatosis which can have interventions. The JAK poly screening for predisposition to malignancies, would if positive, require notification. There would under law be an obligation to inform.

This explains why the GP isn’t overly keen. There is a possible can of worms attached.

The documentation for the test today has inherent in it an authorisation to share genetic test results with relatives if relevant to their healthcare.

Given the price of the test, I am likely to need a specialist to write the JAK screening prescription. They may well want a “who do you think you are” family tree.

You learn something every day…and given the French love of protocol this is non-negotiable.

There are often implications we do not consider…and only find subsequently.

Once you have had test results you cannot un-have them or un-see them…

Hmnn…

High Haemoglobin High Ferritin Normal TSAT – More tests?

Following on from the visit to the rheumatologist I have had my ferritin and transferrin saturation levels tested again today. This rules out hereditary hemochromatosis so no need for HFE genetic testing.

It does not rule out liver disease though my liver enzyme tests were good a month ago. It can be due to chronic inflammation, which I have. It can be due to alcohol misuse but the level has gone up and I am completely on the wagon for four months now. She suggested JAK poly gene screening for myeloproliferative neoplasms (MPNs) to help explain the polycythaemia and to definitively rule out these rare malignancies. The GP said that this was very specialised testing and would need a haematologist to authorise. We will see the wife’s haematologist next week.

As is so often the case one test instead of closing options / diagnoses, opens others. My upcoming sleep apnoea study might add another clue to the mix.

In 1994 I was bled on a regular basis at St Thomas’ hospital to try to address the high haemoglobin levels. They took several “armfuls” … But memory says this increased the haemoglobin levels a few weeks after they pulled the pint.

Maybe I should buy some leeches and have a DIY approach.

I have just found out that I also have mild osteoporosis in the hips which is fairly normal aged related and lower bone density in my spine, osteopenia, slightly more advanced than normal for my age.

Must get a hamster wheel or a challenge reward maze from Amazon…

More questions…