Future Plans – Pre-op Chore List

Assuming that the frequency of hospital appointments remains reduced we can start planning for the future. So far there is no “show stopper” for the pencilled in total hip replacement surgery in late autumn. There are two major appointments for which we do not yet have dates: a pre-op anaesthesia assessment and a CT cardio-angiogram. The latter is due.

The cardiologist suggested that this would probably be ok, but nobody has imaged me thus, yet. Given they operate on frail old nannas I should be good to go. But it may advise on my increased risk. I also need a full dental 360 degree check.

It seems a long way off but when you have a big garden, scale can eat time. I have to think about doing the heavy donkey work before the operation because I will be very incapacitated for 6 weeks or so, through Christmas. No driving for me…We live alone and have to hope that the wife’s health holds. If that starts to fail we are in deep shit.

I am not a fan of last minute dot com.

Chores:

  1. Sewerage check – lift the inspection covers and use plumber’s rods to clear the 30 metres to the cess pit. Should last 3-6 months.
  2. Wood – we need to order some oven dried wood. There is probably about 1 tonne of wood left over to be sorted and sized. I may need to split the pine left over from Tempest Ciaran. Perhaps another tonne or so. I will need to break and clear two wooden pallets. These can be sized for kindling. Two palettes is about 3 months. They may need to be cut to fire-stick ready size. Perhaps I need a new splitting axe.
  3. I need to move some more earth to shore up the side of the pond which has a slow leak. A couple of loads of 250kg of dirt should help it cope with the full pond. The pond always fills to overflow with the autumn rain.
  4. Need to clean and power wash the external hallway. The swallows who nested there will head off for Africa and leave the guano behind.
  5. We need to secure someone to help out in the gardening. The maintenance pruning needs to be put on hold
  6. The pink rambler rose at 2 metres  high needs dead heading.
  7. I have strimming and mole trapping to be done. There will be one or two full property boundary strims to do at 8000 metres squared that is a bit of strimming frenzy.

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  • Indoors we need to sugar soap wash the room near the wood oven. This will provoke painting of much of the downstairs. That is a big job.
  • The downstairs floor needs to be solvent cleaned with acetone to remove dirt accumulation from excess glue. I will need to use my favourite product Mr Propre floor cleaner with a mop.
  • The upstairs kitchen needs to be floored. It is the only remaining room which we have not done already. We have floored in excess of 200 square metres.
  • It may need a lick of paint too.
  • The repaired volet boxes need cleaned and filled, painted to bring back up to standard.
  • There is one room with loose wallpaper which needs removed and new paper perhaps glued in place.

We need to figure out if I need a downstairs hospital bed. The spiral staircase looks to be a bit tricky. The loo and shower are already disabled enabled downstairs.

Do we need a bigger freezer and for me to prepare spicey foods?

Knowing the way things work here I will need a yellow bio-hazard sharps box for the used anti-coagulant syringes, which I will be self-darting.

This seems to be what the next few months looks like heading into year end.

That is probably the scope of it…

I can already use a Zimmer frame and peg about on crutches.

Where can I get a black eye patch and a parrot?

Best Ever Dream – Dancing With Ganesh Dream 20-9-19

Still a bit shaky. I have just woken from my afternoon nap, which usually results from my midday codeine. It is a few weeks after I broke the head of my femur and had it repaired with a Titanium nail. I was taken to A&E in an ambulance. I am using a Zimmer frame and have a hospital bed downstairs.

Wow! That was the most intense dream I have ever had.

—————————-

I arrive at the edge of a walled garden and am welcomed through a large gateway by an upright Ganesh. He has all the typical elephant features, but his gait is that of a human being. He is iridescent blue in colour and has a twinkle in his eyes. I am welcomed into his “humble abode”. He shows me around his palace gardens, gardens that are tropical and scented. There are flowers everywhere. The garden is filled with water features. He takes me to a partially covered courtyard which has red-brown gravel. The pieces of gravel are near perfect spheres. He sits me down and we take tea together brought by his servants. I understand that this courtyard is where he practises his dancing.

A group of Indian musicians file in and seat themselves on the ground. Ganesh signals to them and they start playing. He gets up and starts to dance. His movements are exquisite, and his hands alternate between mudras beautifully and each mudra is exact and precise. He beckons me and starts to teach me some steps of his dance. {In the dream my leg functions fine.} Slowly I get the steps and we are starting to whirl and circle. It is entrancing. He stops suddenly and takes a blue-metallic AUM symbol out of his tunic. He walks over to me and presses it on my Anja centre. Slowly it penetrates and dissolves into me. I am left with a tattoo like impression on my skin. Ganesh smiles radiantly and we continue to dance.

I look at my body and notice that it has somehow taken on the same hue as Ganesh, which pleases me greatly in the dream. He laughs, at my surprise.

—————————

I awake with a start and my first instinct is look at my arms. They are not blue. They are lightly tanned and freckled with a few bruises from all the needles. It takes a while to assemble the reality of the room. I get up and go outside to smoke.

Challenges – Genetics – Having to Endure – Lama Dorje

A working hypothesis I have is that because I do not strut about, talk a lot and generally bullshit, people feel that I am need of education by them. Somehow, they are kind enough to bestow the benefit of their grandiose and unsolicited opinion on me so that I, a mere lowly pleb, might learn from their magnificence. So many offer me their opinions. Obviously, I am in dire need of education.

It is a catch 22. Do you let them rabbit on {endlessly} or flash intellect and make them feel more insecure than they already are. I don’t have an answer. Neither works well.

You may infer from the above that I am an arrogant arsehole. Your reflection in the mirror which is me may not reveal my essence.

Given all the tests in a medical sense that I am having its sounds a bit like someone meandering around in search of some kind of elusive diagnosis of sorts. That could be the case. Or it could simply be the generosity of the French healthcare system in action. The tendency for prophylaxis here is higher than in the UK.

The “health” finger continues to point at genetics. There is a non-normal make up, perhaps. Maybe I am special, so fucking special, or a creep, or a weirdo.

In my extensive recapitulations there is a recurring theme, “having to endure”. I have had to endure all sorts of things starting with bullying at school(s) and being gossiped about extensively, especially when my back was turned and I was not there. I am not paranoid; I have anecdotal evidence in support of this tendency. People curry favour by gossiping and in the past, they have claimed power by association to me. Those days are long gone.

I have an inkling that the current health drama belongs to the subset of “having to endure” challenges. There is little I can do; I simply have to endure and remain calm.

Śāntideva in the Bodhicaryāvatāra, has a whole chapter on forbearance. Bodhidharma was rumoured to have sat watching a wall for nine years.

Maybe one day instead of enduring I may give both barrels. I doubt many could handle it if I ramped up to 9/10 face to face with them. It would be very intense. Outside of experience.

The other working hypothesis I have is that I am tangentially involved in the drama, schemes and socio-political shenanigans of others. The thing is they are over “there” and I am only truly involved in their illusions. People make shit up; they make a drama out of it and somehow, I am caught up in their imaginations. I am written into their imaginary scripts.

I used to wear black Levi’s 501 jeans for decades. I now wear army surplus combat trousers. This dress makes me look a bit like a pikey prepper. I do not look for one minute like an ex-intellectual or the co-founder of a high technology high power laser company. So people tend, in the first instance, to talk down to me, even worse I do not speak high quality French, God’s only intellectual language. I must therefore be an idiotic stupid moron. They judge a book by their mis-interpretation of the cover. The French are as, if not more, arrogant than the English.

What can you do? Let them rabbit on {endlessly}. There is no point in trying to change their habits or self-opinion.

The wife and I have a joke. If I wore Buddhist robes people would treat me entirely differently. If they saw me thus attired in their dreams, they would find it weird.

“Alan always wore jeans in life!!”

There is a part of me that might order some robes on line and do a TikTok type experiment. Go in jeans to an estate agent one day and in robes the next…

But that would be fucking about…

Is there some as yet unseen diagnoses?

Or am I simply enduring the Gattling gun fire of multiple medical tests and appointments?

The current bet is towards the latter…

Lifting up – Drone Overview – Colours – Dream 31-05-2025

Here is this morning’s short dream which replayed a number of times.

The dream starts in a normal city setting in which people are going about their business in a semi-frantic manner. They are rushing about. They are sat at home watching TV, playing computer games and glued to their devices. There is much toing and froing. The colours of life are not vibrant and there is enmity. People are convinced that they are right and living THE life. Like a speeded up Koyaanisqatsi film time lapse, life whizzes by.

I am sat on a small grassy hill nearby. In my hand I have a flying drone controller with which I initially pilot a drone over their life. I turn on the camera and cast the images to their devices. I lift the drone which is white with four silent propellers up out of the scenery to show them the beauty outside of their world. I take control of the drone with my mind and project a world with less enmity and stress. It is relaxed green and pastoral. I show them what they are missing. The colours are bright and vivacious.

The scene starts to replay. As I start to lift the drone out of their normality they set dogs on the drone. The dogs jump and try to catch the drone in their mouths. They are egged on by their owners. Who do not want to see. They, the owners, have high animosity towards me because I am trying to show them another, higher, wider perspective on their lives. No matter how hard the dogs try they cannot catch the drone and I continue to cast “higher” to their devices. I am not in any way thanked for my efforts.

The dream ends after several repeats.

Clearly, I Am the Problem – Neurodivergence

Over the years I have encountered many reactive and defensive behaviours in my interactions with people, mostly men. It seems to me that I do not do the ritual arse sniffing in the way they expect. Nor do I play the laddish itchy back game with enough ego stroking. The worse reactions are from men around 40. By the time they get to 60 they are past most of the BS. I do not piss up the wall of the urinal in the correct manner, apparently.

Clearly, given that I am the only common factor in all this, I am THE problem.

Chris Packham has been doing a TV series on neurodiversity in which he gets people who are diagnosed with various syndromes to do a short film to portray their experiences to their nearest and dearest. Most of the “weirdos” seem interesting to me and fairly high functioning. They are not boring.

The gist is that many feel/felt stress trying to fit and comply with the harsh societal expectations.

No matter how hard they tried they did not fit well and the “diagnoses” gave them a handy explanation for why. It brought relief and sense-making.

My own experience working with the diagnosed is that the worse thing “normal” people can express towards them is impatience and huff. If people are impatient, it causes fear and upset. It leads to internalisation and makes any attempt at expression far worse and more dreaded. Impatience could be said to be an enemy of neurodiverse inclusion. Impatience is the start of a far from virtuous circle.

“You should not be like that. It ought to be easy. Huff!!”

This is the foundation stone of cruelty directed at the different and the stick used to marginalise them. May be they/we are not the problem. Maybe it is the self-righteous and self-important “normal” people. These people who are highly impatient and immediacy fixated.

I know by experimental measurement that I am not neurotypical. I have measured my brain waves using a fast Fourier transform electroencephalograph. Mine differ in that there is way lower neuronal activity which I can also further silence.

It would be impossible to convey my state of mind in a film. Because “normal” people cannot handle neuro-silence and their internal dialogue would start to chatter. If you cannot be quiet mentally you simply cannot get it.

Felix, the stray cat, is unwell. We think we are in the palliative care regime. When I go to feed him and Gandalf, he gets under my feet and rubs himself against my legs. I have to pick him up gently with my foot and “throw” him out of the way. He thinks this is an ace game. Because of my arthritis I am not steady on my legs and stopping and starting is difficult. One day I may stand on him in a painful way.

There is no way that I can explain to Felix that if he is hungry the best thing to do is to get out of my way. Food would arrive quicker and with no less certainty.

It is very difficult to convey how and in what way one might differ. It has to be experienced personally to be fully grasped. All the rest is extrapolation or intellectualisation.

Upcoming I am going to be looking to have my hips surgically replaced. Already I am thinking about how I might behave so as not to get a strange reaction from the surgeon. I will not fit his mental models and there will be a disconnect. Yet I have need of surgery.

How much will I have to act and conceal and hide so as not to be THE problem?

How much will I have to reel myself in?

1984 Quotes – George Orwell


“Orthodoxy means not thinking–not needing to think. Orthodoxy is unconsciousness.”


“Being in a minority, even in a minority of one, did not make you mad. There was truth and there was untruth, and if you clung to the truth even against the whole world, you were not mad.”


“If you want to keep a secret, you must also hide it from yourself.”


“If you want a picture of the future, imagine a boot stamping on a human face—for ever.”


“It was a bright cold day in April, and the clocks were striking thirteen.”


“Doublethink means the power of holding two contradictory beliefs in one’s mind simultaneously, and accepting both of them.”


“Sanity is not statistical.”


“The object of terrorism is terrorism. The object of oppression is oppression. The object of torture is torture. The object of murder is murder. The object of power is power. Now do you begin to understand me?”


“We know that no one ever seizes power with the intention of relinquishing it.”


“The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.”


“Don’t you see that the whole aim of Newspeak is to narrow the range of thought? In the end we shall make thoughtcrime literally impossible, because there will be no words in which to express it.”


“The past was erased, the erasure was forgotten, the lie became the truth.”


“Those who control the present, control the past and those who control the past control the future.”


“Reality exists in the human mind, and nowhere else. Not in the individual mind, which can make mistakes, and in any case soon perishes: only in the mind of the Party, which is collective and immortal.”


“All rulers in all ages have tried to impose a false view of the world upon their followers.”


Karma and End of Life

In my opinion it is very unwise to discount the effects of karma both as an individual, as a group or as a nation. Karma suggests that behavioural causes have inevitable effects. Our actions create our future. There are consequences.

Of course, there is no compelling reason why you should pay heed to my opinion. I am not some big cheese new-age book-selling guru, nor have I been recommended by hosts of followers {paid or otherwise}. I am not famous and I have no introduction written by a senior religious figure, a lama with a throne. My provenance if unknown and/or dodgy.  I am a retired person living in the countryside without cult or church. Perhaps a lone eccentric in a quiet by-way of a vast internet.

In the philosophy of karma, what you sow you reap.

It is not a great step to imagine that harvest comes towards the end of life. That harvest might be of a dual kind, material financial to retire on and spiritual karmic to set up the next evolutionary step, the next life. By the time you reach the autumn of life one might speculate that one has learned good from bad. One may have acquired a modicum of wisdom and life experience. In the light of that knowledge what you do towards end of life is more important because you can no longer plead inexperience or ignorance. As knowledge increases so does karmic import, karmic impact. You know better. You may not behave consistently with this knowledge.

The time in and around your {natural} death is the harvest of karma from this life and the others which precede. One might die well or cling on to the starboard bow with all your energy, afraid of letting go of the ship of life. In order to die “well” it is perhaps wise to pay off any residual karmic debt {if possible} before passing. This is because karmic debt accrues interest. One might wish an enabling birth subsequent.

But if you are of the “phew I got away with it” mentality under no circumstances, might you feel it necessary to settle accounts. You might take your smugness to the crematorium. You may remain stubbornly convinced, entitled even. As the crem gas burners light, you may look on and still think, “I told you so, there is no life after death!”

Even if you do not believe in karma, in the philosophy of karma, your words, deeds and bile add up. Karmically, you deny karma until such time as karma makes itself irrevocably obvious to you. You can struggle but karma is “bigger” than any petty human. Sooner or later “you” learn and your dogmatic adamant insistence to the contrary is shown to be flawed and inaccurate. This can come as quite a shock!!

For example, if you had unresolved karma with me, once divested of your stubborn personality vehicle, we might meet on the cusp of the dream, in the in between of worlds after physical plane death. There you cannot pretend not to have seen me or make an excuse because you are busy. I, still living, would not be surprised to see you but sure as hell you might be. What might you say?

At one time I briefly considered working with end of life care. But when I thought about it, I might go down like a lead balloon with friends and family.

From a Buddhist perspective having a “good” death gains karmic merit, it is a stepping stone, to the other shore of liberation. Being awake and conscious at withdrawal eases the transfer of emotive unpleasantness and thereby lessens the ongoing karmic burden. Panic and fear are not helpful; resistance is ultimately futile. Because of modern medicine I have had six more years. In the old days I would have died when I broke my femur.

I have a pet theory that modern medicine has complicated the workings of karma. That makes sense because karma too must evolve. Human choices are more nuanced than they once were. The temptation to strive to have life on you own terms and to try to dictate to the universe is strong.

In my dreams I have foreseen meetings {after their death} with a number of individuals with whom I was once acquainted. To my knowledge most of them still breathe earth air. If my dreams are predictive, we shall meet again in a “place” with which I am the more familiar.

What I am hinting here is that karma does not cease on “dying” but persists into the in-between experience on going. The slate is not wiped clean. How you live your life at and towards the end matters.

As I suggested at the beginning it is unwise to discount the notion of karma.

Memories – Alzheimer’s – Still Alice

The other night we watched a film “Still Alice” the purpose of which was to get the viewers to empathise with the Columbia University professor Alice who develops early onset Alzheimer’s disease. It portrayed the impact on her and her family as she lost cognitive function and recall. There was no CGI, sex or violence in the film and it was engaging, well written and well-acted. A nice change from the glitzy, violent and insubstantial. It was a bit sentimental drawing on the American idealism of family and career. It showed how when someone devotes all life to career it can be taken away. Where value is placed can be fragile.

It is pretty easy to prematurely self-diagnose Alzheimer’s as one moves towards dotage. In our case the need for linguistic engagement outside of our proximal relationship is minimal. One could say that I am out of practice talking shite.

Modern psychology is very normative in its approach and there are a series of behavioural norms which, if there is divergence from, evokes a label of illness or syndrome. I don’t know where the set of societal norms are garnered from, what the statistical evidence is or whether the ultimate arbiter of “they” decrees what is normal. I don’t know who drew up and populated the Venn diagrams.

In the film there was mention of “memory makes us who we are”, there was thumbing of family photo albums and old holiday film footage was played in the narrative.

Human perception is never 100% objective and any recall of past events is subject to selective perception and selective memory. Humans are biased. We have selective recall. The memories, the bedrock upon which we build our re-collection of life are not entirely sound. In the film the protagonist identified as a clever university professor. That identity was removed when she started to lecture poorly. Her entire personal legend fell into question. The film suggested she suffered during this process, trying to cling on to her faculties and her legend.

A saccharin rose-tinted view of the past is perhaps the tearful key to enjoy the twilight years according to many. Looking back wistfully sustains as incapacity and incontinence sets in. Our past “glories” provide a nice warm feeling which is not a leaking catheter. The ability to live partially in the past is seen good as the quantity of future available fades.

I am certain that how I hold memories of the past differs from many because I have recapitulated my life numerous times and worked hard at erasing my personal history {not in a browser}. I’ll speculate that were a psychologist to investigate my recall of life memory they might note a difference to norm.

I am not beholden to past nor do I cling on to it. Nevertheless, it has a causal relationship in how I interact in the now. I have a decent scientific training and could, if pushed, sustain a scientific conversation or persona.

One could argue that I have forgotten who or what I once was and have morphed into an anti-social bumpkin. Look how far he has sunken! What a fall from intellectual grace! How sad, what a shame!

But that would be facile.

This addiction to creating “memories” or “Insta-stories” is counterproductive to the pursuit of liberation. The concretising enhances the urge for rebirth. The constant re-telling of “family means everything” is often a lie and something we are encouraged to provide in our PR stories for public consumption. There is a big illusion concerning “family”. To err from ideal is seen as bad even when the ideal itself is an illusory construct. We are complicit in the propagation and recounting of this illusion.

This means that although I can appear approximately normal, the underlying psyche in my case differs markedly in that a shared basis is not there. I do not think the way I am “supposed” to.

About a decade ago I had cause to re-learn university level physical chemistry. It took a while. I had big difficulty because some of the so-called proofs which I once accepted without question no longer seemed adequate to me. They seemed short-cut. Yet thousands of undergraduates receive degrees every year by correctly reproducing them and applying them mathematically to exercises generated by faculty. I have no doubt in the physical applicability of much science, because we can build rockets that work. I am not entirely convinced that the methodology is as perfect as we imagine and profess. There may be some element of kidding of self along the way.

Maybe I have lost my science ability, my science faculties.

The film touched briefly on the notion of identity, or self, and hence self-perception. Something which Alzheimer’s gradually erases, if I understand correctly. In some ways my notions of self are gone already even though I maintain some cognitive function and have near zero resident social-event memory. There is nothing which I cling to and not very much which keeps me here, incarnate, on earth.

This notion of self, seen as good, is also behind war and conflict. The gist of the film was that maintaining the sense of self and still being the same person underneath despite all the loss of function and memory was a good thing. I am still…despite…

I am not sure that it is, from the point of view of liberation. Karmically if you place a lot of stock in intellect and its application, then to have it withdrawn is a major challenge. One which could set you up well for the next life. Sometimes our worst fears manifest and that is not necessarily a bad thing. Our challenges at end of life can be the most profound and the most enabling for our onward evolution.

In the end, for all of us, our current notion of self must dissolve and pass whether quickly or otherwise.

Self is impermanent.

Getting Psyched Up for Hip Replacement

It seems that the bulk of the next year will encompass bilateral hip replacement surgery. That is with one big proviso, namely that someone is kindly willing to go ahead with the knife and the drill. I have already had pseudo-emergency hip surgery to mend a fracture in the neck and ball of my left femur. I had to wait three days morphed out of my head for the operation. There was an innate knowing that each day I waited the outcomes would be worse. To get prepped for operation in the morning and then to be told it is not going ahead is not the greatest of tidings to hear. In September 2019 I started my 55th year post-op with a titanium prothesis. I was awake during the operation which felt that someone was at my skeleton with an industrial grade civil engineering jack-hammer. Your whole skeleton resonates. I have an inkling and would prefer a general anaesthetic next time.

As can be seen from my April X-rays the situation with my left hip is complex.

There has been a bony growth {blue arrow} over the top of the implant. This will need to be chiselled off to enable the pin to be unscrewed.

We could be talking three operations. One to remove the metallic pin, one to fit the right hip and one to fit the left hip. It will be up to the surgeon to decide what to do. You can see from the X-ray images that I am bone on bone, so to speak, on both sides. My range of movement is very limited. My arthritis is classified as severe or to use a lovely turn of phrase, end stage.

In my mind it is not clear how easy or otherwise it will be to have a successful complete hip replacement on the left hand side. The right hand side seems more common or garden.

At the time of the accident, a fall from standing in the kitchen, I was not checked for any bone weakness such as osteoporosis. There was a lot going on. The age at which the major fracture occurred for a male was young given a relatively minor trauma. The GP has kindly prescribed a bone density scan just to check if there are any bone strength anomalies we need to consider. If there is weakness there are some further blood tests including testosterone and calcium levels etc. A weakened bone has implications for hip replacement.

If you search for hip replacement personal stories on Dr Google you are confronted with masses of marketing and PR from various outfits offering butchery and repair. They are nearly always upbeat and scant in detail on the downsides. There must be some horror stories out there but these are not easily found. Why not? Without being overly macabre I would like to read some to get more balance. They have been somehow redacted. I get it that in most cases the surgery is transformative. I am always a little wary of one-sided reporting. It irks and poses the question.

I have no idea as to how well I tolerate pain compared to most. My speculation is that I can tolerate and endure better than average. Thus, my arthritis has progressed this far without me whinging and moaning too much. At the moment the pain levels are boring and wearing. They do grind you down a bit just as the joints grind away. Movement can feel like a pepper mill at the end of the day or a long walk. The 3 AM pain and subsequent medication is a tad intrusive. We have a supply of mid-to-high level analgesia in the pantry {given to the wife} which I have not touched yet. The possibility of a “trainspotting” red carpet moment exists.

I do not imagine myself doing a pogo to the Sex Pistols post op. It remains to be seen to what extent movement returns and pain diminishes. If you read the glossy bigged-up articles and watch the videos my career at the Bolshoi can restart, soon enough.

I have enough upper body strength to use a Zimmer frame with ease whilst sporting my Crips gang colours. This strength is on the one hand enabling and on the other limits my need to do recovery leg exercises. A mixed blessing.

We will need to pay for a gardener to do the hard labour I once did. It looks like we will stay here for the next year. To attempt to move house in the middle of getting sliced would be lunacy.

On the one hand there could be enhanced movement and a “new life” or at least a better few years. More likely the improvement will not be step function but an obvious improvement.

I know that I can hack lying around post-op with sexy compression stockings and daily anti-clotting injections. I will lose weight because muscle mass will go. I will not eat much at the hospital. The biggest worry would be a Myeloma relapse for the wife. That would make things very tricky. Two ill and disabled people in the same house. We already have a well-used loyalty card at the local hospitals. We could write a “Michelin” guide to French health services.

I don’t really have fear, yet. I have had general aesthetics near half a dozen times. In a weird way I quite enjoy the coming to process.

Again, the district nurses are likely to be regular visitors chez nous.

Yup it looks like close on a year for two {three} operations and the recoveries therefrom.

Life will kind of be on hold…